Doctors see something coming out of baby’s nose. When they find out what it was, it left them in awe. At the age of four months, Zachary underwent a ninehour surgery to remove a large sack from his face that had formed when he was born. Zachary was born on December 29, 2016, to Vileka Regal of Oak Harbor, Ohio, and the couple is very happy. Four months after giving birth, she finally saw her baby’s eyes for the first time.
Zachary, now six, was born with a huge sack covering his face, which he’s since outgrown. Regal sent a letter to her son for Cincinnati Children’s Hospital, describing how the growth had completely covered his eyes and nose, leaving only a little piece of his mouth visible.
The sack was crushing his nasal cavities, and it was so heavy that surgeons had to build a special sling to lift it away from his mouth and nose, sparing his life, Regal, age 46, wrote on her Facebook page. I cried, felt irritated, was afraid and became furious of God. Your face had no eyes, nose or eyelashes.
All I saw was a protrusion and a pair of tiny, small lips. Nothing else. However, you never lost your beauty in my eyes. During Regal’s fifth month of pregnancy, doctors discovered Zachary’s encephalocelli, a rare birth defect in which brain matter escapes the skull and collects in a sack between the eyes. Thanks to the efforts of a team of 22 doctors, Zachary was born by a cesarean section.
Zachary was too small when he was born to undergo the nine hour surgery required to remove the tumor within the first few months of his life. In April of this year, doctors were able to successfully remove the sac, fix the gap and restore the little boy’s face. In an interview with Today, Regal remarked, I promptly burst into tears because I had no idea he had such stunning long eyelashes and big Brown eyes on both sides. They were absolutely faultless, Regal stated. I never in a million years dreamed we’d be here a year later.
It’s incredible. She described her son’s face as wonderful following the surgery, claiming she was able to see his entire face for the first time after the procedure. Despite this, she confesses that getting adjusted to the new regimen has taken some time. I had come to fall in love with this tiny baby with this gigantic ball on his face, she told Today magazine. He used to enjoy himself with it.
He kept scrubbing his face for the first several days as if saying, Wait, wait, I’m not seeing it, I’m not feeling it. The child’s mother is written in a letter in which she expresses her love for him and describes the challenges they’ve faced parenting him. Let’s take a look at what she had to say when I found out about your encephalocelle during my fifth month of pregnancy, I took the best options for both of us. I couldn’t believe my eyes when I saw the fetal MRI and ultrasound photos which didn’t match the throbbing energy I felt with every twist, turn, punch and stab. Back then I knew you were and still are a fighter.
I cried, felt indignant, was afraid, and became bitter with God for five months. Why would he, at the age of 45, bring you into my life? What are you doing in this place? It’s all for the sake of becoming a statistical likelihood of one in 5000 live birth surviving. I couldn’t put my finger on it.
I had caused to believe in medicine as a nurse, as a mother, though, I made the decision to let go of my convictions. From the moment you were born, your mother and father were separated into two hospitals. I only had a glimpse of you because I had hemorrhaged and needed to be intubated soon away by the ICU staff while you were fighting for your life down the street, they saved my life. On your face, just a large protrusion and tiny little lips could be seen. No eyes, nose or eyelashes could be seen.
Despite this, I found you to be pretty appealing. Three days later we met Pats again in the NICU when I was moved and we’ll do your incubator by the nurses. I can only hold you for about a minute. I couldn’t stay because I was too unwell, but the thought of leaving you behind hurt every cell in my body. My heart was torn and my spirit was destroyed despite our separation.
But I knew I had to remain strong for you. As the clock struck twelve, my anticipating grins faded into quietness as I quietly observed individuals leaving with their newborn in their arms. On the way back to Toledo, I was wondering if you and I would ever wind up in the same automobile for 135 days. You were an inpatient inpatient care for 135 days equals 19 weeks, 3240 hours, 194,400 minutes and 11 million second. I only left your side to finish 312 hours work shifts that were 4 hours apart.
I had several talks with you in my heart and with God in my head. During the drive which I will share with you, I started humming Thy Will Be Done, a song by Hillary Scott and the Scott family again and over and over. I got it so that when you’re older and can understand what’s being said, I can play it for you. Those long journeys gave me a chance to relax and think about what we’re going to face. A craniotomy is performed as well as the excision of a repair of an encephalocelle, a craniotomy encephalocelle removal and repair, and a craniotomy where the procedures are required.
And I was afraid you wouldn’t return in the form of the tiny Angel I’d grown to admire. Finally, when I had attained my goal weight of £15, you left me for surgery on day 128 and returned 9 hours later. Incubated in the Intensive Care unit. I hadn’t seen your face a long time. You did have two stunning Brown eyes with long, fluffy brows and lashes, as well as a lovely grin to go with your cuteness.
You possessed a charming button nose and nicely sculpted lips. Although your scars were little, the swelling you were feeling was substantial. We had two more obstacles to overcome after that, decreasing swelling and removing your breathing tube from your body. You took out your three IVs an arterial line the next day and sent a note to the PICU team requesting that your intubation tube be removed as soon as possible. They cooperated and you triumphed with flying colors.
The entire staff appreciated you from the heart. When are we going to get our baby back? The nurses and PCTs from a seven kept calling the PICU personnel after the patient was excavated. Everyone adored you to the point of obsession. There is something for everyone, from environmental services to volunteers, holistic care, Maria Pastor, sue, student nurses and Joshua Care team PCTs and nursing staff.
Your new room was decorated with streamers signs and photos, which you obviously appreciated when you returned. The team met you with cheers, clapping, a tunnel and tears of joy. This unit was technically involved in your upbringing from the moment you were born. We’ve completed our return travel. We drove back to Toledo together less than five days later, and it was a fantastic experience.
All the doctors and caregivers at Cincinnati Children’s Hospital Medical Center will be forever thankful to me. Dr. Stevenson in particular changed my life by stating we can, while other doctors said we can’t. Also thank you to Dr. Pan for assisting you in discovering your actual hidden body.
I have no idea what awaits us on our journey, but I’m certain that we will cherish every moment we have together. You will never utter the words I can’t. Everything is conceivable if we accept life for what it is a profoundly flawed whole. You will love one another entirely and unconditionally as we were created to love one another. Have a fantastic birthday, Zach.
I’m head over heels in love with you, mom. Is this a touching message? But what exactly is encephalocelle? A section of the brain protrudes through a gap in the skull caused by a lack of bone fusion. Encephalocelles are rare birth abnormalities caused by a partial failure of bone fusion in the skull, resulting in a hole through which a portion of the brain protrudes cerebral spinal fluid or the membranes that cover the brain may also leak into the environment as a result of this.
Rupture skin or a thin membrane is frequently used to cover the region of the brain that protrudes beyond the skull, giving the defect the appearance of a little sac. Protruding tissue can develop anywhere in the head, but in the most prevalent on the back of the skull.
Encephalocelles are a big and serious birth defect that’s almost always diagnosed before the infant is born. It’s likely that certain encephalocelles are tiny and so go unnoticed in extremely rare cases. Despite the fact that the exact ideology of encephalocelles is unknown, the condition is most likely the result of a combination of factors.
Encephalocelles are a type of neural tube defect that affects the development of the brain. The neural tube is a hole in the developing fetus’s skull that allows the brain and spinal cord to develop early in pregnancy. During the third or fourth week, the neural tube folds and closes to complete the building of the brain and spinal cord which is required for appropriate development.
A neural tube defect occurs when the neural tube does not close completely and it can occur anywhere in the head, neck or spine. Failure to adequately close the neural tube can result in a herniation process or sessile cystic lesion protruding through a cranial vault defect known as an encephalocelle.
They can be filled with both herniated messages and brain tissue or just encephalocelles on the other hand are encephalocelles which contain tissue from the brain and spinal cord. Thanks for reading.